Living Will—-Make it your Gift to Your Loved Ones
July 9th, 2010
We all have to do better. It’s not just that most people do not have an Advance Directive, sometimes called a “Living Will”; even those that do have one, probably have done a poor job with it. In theory, this document is supposed to tell the world our health care choices if we ever become unable to communicate them. The reality is often much different.
Many Advance Directives are mere checklists with preprinted statements, or one-page documents from the Internet, stating in flowery terms, how much you enjoy an “active life” and, if it ever came to pass that you developed a medical condition which would severely impact your ability to enjoy life, you would like all medical treatment discontinued. These same documents often state, “I don’t want any heroic measures taken”; no extraordinary care given”.
Can you imagine the poor doctor, nurse or family member who has to determine if what is happening to you at that particular time in the hospital, is what you were talking about it your Advance Directive? Will they know that what the doctor is advising to have done is what you meant by “heroic measures”? Would you consider your specific condition to result in a “serious impact” to your “quality of life”? Is this the situation in which you wanted the ‘plug pulled’? Would you want the responsibility of making this decision for a loved one?
The fact is that many Advance Directives are too general. Little time is spent thinking about the issues and specifics. Worse yet, many of us first consider these issues as we are entering a hospital and are presented with a general checklist form prepared by the hospital. There is simply no time spent for personal consideration of our own mortality. Yet, we have no problem leaving these decisions to others.
A major component to any “Living Will” is a healthcare proxy, or power of attorney.
Usually, in the same document, the person writing the Living Will names a person or persons to make decisions for them, if they cannot do so for themselves. These are usually a spouse, son, or daughter. Sometimes, all of the children are named, as co-proxy holders. To the extent that your living will is not clear, this person or these people may make decisions for you. This person or these people will be empowered to determine if what is specifically happening to you is a condition which you would find to be intolerable.
There is no more weightier decision (unless of course, you made it easy for them by naming your healthcare proxy as a beneficiary of your estate). The fact is that most healthcare proxies avoid making the decision. They just do not know if what you wrote covers what is happening now. If there are co-proxies, the problems are even worse. There will be disagreement, especially among co-proxies who are siblings. The one child, who hasn’t seen mom or dad in decades, will come in and say that “mom is a fighter….don’t withhold treatment”. The others will disagree. Eventually, a decision will be made, and the siblings will never talk to each other again. Those that made the decision will suffer guilt for years.
So, why even bother having an advance directive? Because if you do it right, it will help you realize your wishes, and it will relieve a burden on your loved ones.
First, understand that advance planning is a process, not a transaction or document.
Think about the issues you need to face. If you have a medical condition, what may happen to you as a result? Is there a family history of a medical condition? Is there a point in treatment when you would say, “no more”? Talk to your physician, your spouse, and your family. Don’t forget to talk to your religious leader; many religions have doctrine in this area. Do your homework.
Second, when writing your document, be as specific as possible. Avoid generalizations and phrases like “extraordinary care” and “heroic measures”. Try to keep that poor family member, nurse or doctor who has to determine what, specifically, you mean, in mind. Feel free to give examples, or cite conditions.
Third, understand that no matter how clear you are in writing your Advance Directive, if the time comes for it to be used, the specific circumstances may not be clearly covered. It is therefore important that you appoint a healthcare proxy. It may seem “fair” to you to name all of your children as co-proxies. I can guarantee you that they will not see it the same way. Choose someone who understands your wishes and philosophy; someone who will be your advocate when you cannot speak for yourself.
Fourth, discuss your wishes and philosophy with your proxy, and with your family. This discussion can be difficult, but if you wait, it will only get worse. Keep in mind that you want this document to be a gift to your family. You want to be able to say,
“Here. You do not have to make these decisions. I have already made them for you.”
Give them this gift.
Finally, drafting an advance directive is not a one shot deal. Your values and ideas will change over time. Certainly, what you thought would be intolerable when you were thirty, may not be so intolerable when you are seventy. What may have seemed intolerable when you were well, may not seem so intolerable when you developed a medical condition. Make the necessary changes. Review your document before each physical exam; prior to entering the hospital; after a major medical change; and every five years.